|Venue||Finnstown Country House Hotel, Newcastle Rd, Lucan|
|Date||Thursday, October 17th , 2019|
|Time||9:30 am - 2:00 pm|
With the continued ongoing pressures on the National Drugs Budget, we are bringing together an expert panel to discuss how this is impacting on patient care, and the potential consequences of inequity in access to medication.
“Equity of Access to Medications and Healthcare
– current situation and the future”
Stephen Donnelly, Health Spokesman – Fianna Fáil
Stephen Donnelly is a TD for Wicklow and East Carlow & is the Health Spokesman for Fianna Fáil. He first ran for office in 2011, in response to Ireland’s growing economic and social crises. At first as an Independent, Stephen became co-founder and joint leader of the Social Democrats, and moved to Fianna Fáil in early 2017. Stephen has worked across many sectors, including private equity, retail, public infrastructure, healthcare, education, international development, the voluntary and social sectors.
He holds a Master in Public Administration in International Development from Harvard Kennedy School, and a Bachelor of Engineering from University College Dublin. He has also co-authored paper on design tools for high-tech, large-scale manufacturing.
Dr Roisin Adams – Head of HTA Strategy and External Engagement – NCPE and BeNeLuxA representative for Ireland
Topic: “A World Without HTA”
Roisin is Head of HTA Strategy and External engagement for the NCPE. She led the HTA team for a number of years before being seconded to the HSE to lead a new unit tasked with overseeing and managing high cost drugs in acute hospitals. Roisin also co- chairs the HTA domain of the BeNeLuxA initiative and oversees the EUNetHTA work of the NCPE. She has been awarded a number of grants from the Health Research Board to examine health preferences in Ireland, the most recent examines patient preferences in HTA. Her areas of interest include methods for preference elicitation, combining different data for evidence synthesis and reimbursement mechanisms for high cost drugs. She has held advisory positions for Department of Health, the Health Information and Quality Authority and policy direction at EU level.
Dr Anne-Marie Baird – Cancer Researcher & Patient Advocate – Trinity College
Topic: “Equity of access – the patient reality”
Anne-Marie is a molecular biologist, who has worked extensively on mesothelioma and lung cancer. Her research interests are in inflammation, epigenetics, drug resistance and disease biomarkers. She is currently a Senior Research Fellow in Trinity College Dublin. Outside of the lab, Anne-Marie became involved in lung cancer patient advocacy, starting with her participation in the lung cancer social media (#LCSM) community in 2012. Since then Anne-Marie has been active in the advocacy space, becoming a board member of Lung Cancer Europe (LuCE) in 2018 and currently serves as the LuCE representative on the European CanCer Organisation Patient Advisory Committee. She also chairs the International Association for the Study of Lung Cancer (IASLC) Communications Committee and assists with their STARS (Supportive Training for Advocates in Research and Science) program. Anne-Marie is a dedicated patient advocate at both the national and European level, working to influence policy change and inspire patient driven research.
Prof Walter Cullen, General Practitioner & Professor of Urban General Practice – UCD School of Medicine
Topic : “How do we enhance access to evidence based treatments for those who need them the most?”
Walter is a general practitioner and Professor of Urban General Practice at UCD School of Medicine, a role he has held since 2014. Previously, he was the Foundation Professor of General Practice at the University of Limerick Graduate Entry Medical School. He has just completed Irish based research on the treatment of Hepatitis C patients. Walter has a strong background in research and data collection in patient outcomes and long term cost benefits of treatment.
Derick Mitchell, Chief Executive – Irish Platform for Patient Organisations, Science & Industry (IPPOSI)
Topic: “The Value of Patient Data”
Derick has over ten years experience of working in patient involvement, multi-stakeholder management, scientific communications and advocacy at both the national and European level, and has a strong interest in the area of patient and public involvement in research. Derick leads IPPOSI’s participation in the European Patients Academy (EUPATI), an initiative which is training patients to become involved in the medicines R&D process, and has spread the IPPOSI public-private partnership model to over 20 countries. Derick is a member of a number of national and international boards including the EHealth Ireland committee; the oversight committee for the National Rare Disease Plan; the Medical and Life Sciences Committee of the Royal Irish Academy, the International Advisory Board of the HRB-Trials Methodology Research Network; the HIQA Research Ethics & HTA Advisory Boards, among others. Derick graduated with a BSc. (Hons) in Biotechnology from NUI Galway, followed by a PhD in Molecular Medicine from UCD.
Brenda Dooley, Founding CEO – AXIS Consulting
Topic: Key findings from recent research into the experiences of patient organisations with Irish HTA submissions.
With over 15 years working in Patient Access, Brenda has expert knowledge of the Irish and UK healthcare systems and extensive experience in navigating routes to market for Orphan medicines. Brenda holds a M.Sc. in Health Economics, a BA (Hons) Business Studies and a Dip.(Hons) in Financial Management. She is a member of the Audit Committee at NUI Galway and involved in expert panels in EUCOPE and EMIG including the inaugural forum on Patient Involvement in HTA.
Marian Hernon, HTA Manager – AXIS Consulting
Marian holds an M.A in Health Promotion and is currently completing her PhD in Health Economics at TCD. She has worked in the area of population health and health services research for over 8 years, including academic positions and the HSE.
Megan Smith, Senior Manager Medical Strategy – Irish Life Health
Topic: The role of private healthcare in the Irish healthcare system
As a qualified and registered physiotherapist, with a Master’s Degree in Medical Science and a MBA, Megan’s work experience ranges from work in public and private healthcare, rehabilitation, case management, health insurance and management consulting.
Having studied and worked in South Africa, she has been exposed to healthcare from a grassroots, primary care level in rural 3rd world communities to private, state of the art facilities in 1st world environments. Her experience working in both UK and Ireland over the past 8 years has further expanded her experience through the vast variances in patient care and health industry practiced in public and private settings both within countries and across the world. Through Megan’s career, she has been fortunate to work in sectors where she’s had the ability and opportunity to connect both the world of healthcare with the world of business. It is through this type of partnering and collaborative work, she believes we can progress and achieve proactive and innovative health and wellness solutions which are accessible by everyone.
Conor Brophy, Director of Strategic Communications – Teneo
MC for this event will be Conor Brophy.
This event is proudly sponsored by:
TCP Homecare specialises in ‘Direct to Patient Services’ delivered on behalf of either the pharmaceutical industry or the HSE. Services include dispensing and home delivery of specialised pharmaceutical products, home or clinic based nursing support and compliance management.
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